Virtual National Conference
03/26/2021
03/27/2021
About

 

About

               

The Huntington Society of Canada (HSC) is a not-for-profit charitable organization that raises funds to deliver individual and group counselling services to support individuals and families living with Huntington disease (HD) and to fund medical research to delay or stop the progression of the disease. It’s a strong group from coast to coast, sharing in the journey of living with a hereditary, neurodegenerative disease that impacts families, friends and caregivers. HSC aims to help maximize the quality of life of people living with HD by: 

  • Delivering services to support individuals and families
  • Increasing awareness to help others better understand the disease
  • Funding research to slow the progression of the disease and to prevent HD


We are excited to bring our biennial conference into the homes of our communities as we make the necessary shift to a virtual setting, offered at no cost to attendees.

Our postponed 2020 National Conference in Niagara was set to be our most extensive conference yet - all 350 available spots were claimed and excitement was building. Now, eliminating geographic and financial barriers has allowed us to connect with a larger audience than ever before, with the added bonus of no travel hassles.

This event gives the HD community an opportunity to connect, learn and grow through this time of isolation. We’re committed to exceeding expectations with the interactive experience and continuing to share experiences.

Agenda
FAQ
When/where do I sign up?
Can I invite others to sign up?
What if I can’t attend the day of the conference?
How do I log in?
  • You will receive a link to the Virtual National Conference site a week before the conference date of March 27. This email will also contain helpful hints for logging in and accessing session and other conference features.
Who do I connect with should I have issues with my login?
What material will be recorded?
  • All speaker sessions will be recorded and viewable on the inevent platform, which is the program that will host the Virtual National Conference. It is user-friendly and has many great features to use to make the experience interactive and rewarding.
  • The Keynote Address by Chris Koch will be available on the inevent platform exclusively for two weeks following the conference. All other speaker sessions will be available on the inevent site and will also be uploaded to our website and YouTube channel for viewing at your leisure. Only the presenters are filmed; no attendees will be recorded.
  • Social sessions will not be recorded
Will there be handouts available?
  • There will be handouts available for some sessions.  They can be downloaded during the sessions under the “file tab” on the inevent interface.
How will my privacy be protected?
  • When you register for the conference you have the option to be visible to other attendees or not. If you would like to remain private and not engage in networking, you can change this setting.
Is there a cost to attend the conference?
  • The conference is free for all to attend!  If you would like to support the Huntington Society by making a donation, you are free to do so, but it is not required.
What technology/equipment do I need?
  • You will need Wifi or a plugged in internet connection
  • You can use a desktop or laptop computer with working audio, or a tablet/iPad or smartphone. Headphones are an option. 
  • If you would like to join the social sessions with the video chat function, you’ll also need a web cam and working microphone (most computers have one built-in). You can also join the social session as a viewer and use the chat bar if you prefer not to join with video and audio enabled.
What if there are two sessions running at the same time, and that I would like to hear?
  • All of the sessions will be recorded, so you can attend one and watch the others at a later time. 
Speakers
Others

Bev Heim-Myers

Bev Heim-Myers

Chris Koch

Chris Koch

Dr. Leora Fox

Dr. Leora Fox

Dr. Rachel Harding

Dr. Rachel Harding

Jimmy Pollard

Jimmy Pollard

Judith Wahl

Judith Wahl

Prof. Ed Wild

Prof. Ed Wild

Ray Truant

Ray Truant

Ronna Schneberger

Ronna Schneberger
Agenda
26
6:00 PM
to 6:30 PM
Welcome to the Virtual National Conference!
27
1:00 PM
to 1:50 PM
Kick-Off Keynote - If I Can...

Chris Koch doesn’t let limitations or obstacles stand in his way. Despite being born without arms and legs, Koch grew up like any other small-town kid — playing road hockey, causing mischief at school, and helping out on his family farm. Neither he or his family treated his disability like a tragedy, and instead used it to fuel his dreams. Today, Koch is a motivational speaker who inspires his audiences to continually challenge themselves and build the life they dream of.

Born in Lethbridge, Alberta, Koch was raised in the small farming and ranching community of Nanton, Alberta. Early on, he learned that he would not be raised with pity or sympathy. Sure, he had to do things a little differently and some tasks took him a little longer to complete than others, but he was determined to be just like the rest and was always treated just like the rest. After all, he still had a good head on his shoulders and with that, anything is possible.

Koch loves sharing his story and spreading his message of, “If I Can…” An avid traveler, marathoner, and farmer, his presentation reflects his full life. Simply put, Koch says, if I can do what I’ve done so far in my life, what’s stopping others from doing the same?

Speakers
1:50 PM
to 2:00 PM
Break
2:00 PM
to 2:45 PM
Easy But Difficult Accommodation In Cognitive Care
Speakers
2:00 PM
to 2:45 PM
Genetic Fairness
Speakers
2:45 PM
to 3:00 PM
Break
3:00 PM
to 4:00 PM
Medical Assistance in Dying
Speakers
3:00 PM
to 3:30 PM
Navigating Relationships
3:30 PM
to 4:00 PM
Forest Therapy
4:00 PM
to 4:10 PM
Break
6:00 PM
to 8:00 PM
Social Table 2
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Speakers
Sponsors